Browse by topic: Education, Lymphedema After Breast Cancer, Lymphedema After Cancer, Advocacy, Community, Exercise, Breast Cancer, Fashion and Beauty
Education
- Lymphatic Education & Research Network Education, research and advocacy
- National Cancer Institutes: Lymphedema: General information, managing lymphedema, treatment options, current clinical trials
- Mayo Clinic: Lymphedema Definition, symptoms, causes, treatment, support
- Vascular Disease Foundation: Lymphedema (PDF) Definition, causes, symptoms, risk factors, diagnosis, treatment
- Cleveland Clinic: Lymphedema Definition, signs and symptoms, diagnosis, treatment, general guidelines for patients with lymphedema
- The Lymphoedema Support Network (UK) Represents, supports and empowers people affected by lymphoedema
- Memorial Sloan Kettering Cancer Center: Day to Day Coping with Lymphedema (Video series) understanding the lymphatic system, lymphedema causes, lymphedema and cancer treatment, skin care in reducing risk, exercise, diet, air travel, stress
- American Cancer Society: Lymphedema page about lymphedema.
- LymphNotes.com is an independent source of objective information about lymphedema.
- What is Lymphedema? Infographic in ADVANCE Magazine with information by Nicole Stout, DPT
Lymphedema After Breast Cancer
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WebMD: Lymphedema After Breast Cancer General information, risk reduction, signs & symptoms
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American Cancer Society: Lymphedema: What Every Woman with Breast Cancer Should Know General information, signs of lymphedema, swelling after surgery or radiation, risk reduction practices for those at risk and those who have lymphedema
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Living Beyond Breast Cancer: Guide to Understanding Lymphedema (PDF) General information, early signs, risk reduction, treating lymphedema, the emotional side effect of lymphedema, paying for lymphedema care, resources
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BreastCancer.Org: Lymphedema Definition, signs and symptoms, when and where lymphedema can occur, risk factors, risk reduction, exercise, infection, evaluation and diagnosis, treatment, finding a therapist
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Step Up, Speak Out! advocacy, support, and resources
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Lymphedema After Breast Cancer: (YouTube) by Beth Erhardt, OTR, John Hopkins Medicine
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Lymphedema After Cancer Treatment (YouTube) by Josh Levin, President LympheDIVAs for Lymphatic Education and Research Network (LER&RN)
Lymphedema After Cancer
- Dana-Farber Cancer Institute: How to Prevent and Manage Lymphedema Definition, risk reduction, management
- American Society of Clinical Oncology: Buildup of Fluid or Lymphedema Symptoms, causes, diagnosis, treatment
- Livestrong Foundation: Lymphedema Symptoms, risk reduction, treatment options
Advocacy
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Lymphedema Treatment Act (HR 3877) this proposed bill will improve coverage for the treatment of lymphedema from any cause
Community
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Lymphedema Community a social network for patients, therapists, physicians and industry professionals
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BreastCancer.org Discussion Boards: Lymphedema Risks, tips for prevention and info about products that can address the symptoms of lymphedema
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LymphNotes.com Forums an online community to discuss lymphedema questions both physical and emotional
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Lymphedema People A site for people with lymphedema, made by people with lymphedema.
Exercise
- Exercise for Lymphedema by Molly Nettles, OTR/L, CLT-LANA, STAR/C, Director of Lymphedema Services at Georgia Regents Health System
- Ocean Soul Yoga Learn about yoga for cancer recovery and purchase the new Yoga for cancer recovery DVD created by breast cancer survivor and LympheDIVAS client Claire Petretti.
- Pink Ribbon Program is dedicated to promoting a healthy lifestyle and positive body image to all breast cancer survivors. They will help stretch and strengthen the shoulder, chest, back, and abdominal muscles, allowing women to regain full range of motion to those areas affected by breast cancer surgery.
- Breast Cancer Yoga Easy to learn breathing CDs for breast cancer recovery and lymphedema management. CDs professionally recorded by Diana Ross, a breast cancer thriver.
Breast Cancer
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Young Survival Coalition (YSC) is a nonprofit dedicated to the concerns and issues that are unique to young women and breast cancer.
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Living Beyond Breast Cancer (LBBC) is a nonprofit organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life.
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Breastcancer.org is a nonprofit organization dedicated to providing the most reliable, complete, and up-to-date information about breast cancer.
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American Cancer Society: Breast Cancer provides general information on breast cancer.
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"The Empty Cup Runneth Over" is a book written by Cindy Papale and Sabrina Hernandez focused on issues surrounding breast cancer. Find the LympheDIVAs inside!
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Pink-Link is an online breast cancer support group.
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Bereaved Families Relief Network (BFRIN) is a non-profit organization providing product grants and counseling to women diagnosed with breast cancer and lymphedema.
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PearlPoint Cancer Support provides personalized and compassionate guidance to any adult impacted by cancer, free of charge.
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HIS Breast Cancer Awareness is a non profit organization offering insight, education and awareness on male breast cancer.
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BostonCancerSupport.org is Greater Boston's non-profit cancer resource. Find local support groups/rehabilitation centers; transportation to treatments; financial aid and more.
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BreastInvestigators.com is dedicated to taking the mystery out of breast cancer. Breast Investigators provides tools to individuals, breast cancer patients, cancer survivors and previvors to help them make the best, most informed decisions about their breast health and well being. The website provides information, blogs, events and a directory listings of healthcare providers, complementary care providers, emotional support and assistance.
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Lacuna Loft is a 501(c)3 nonprofit that encourages, empowers, and connects young adult cancer and chronic illness survivors and caregivers around the globe, 24/7. Lacuna Loft provides online access to wellness resources, lifestyle encouragement, and peer support community that young adults need to overcome their challenging health and life circumstances, and thrive.
- Support Connection, Inc. is a not-for-profit organization established in 1996 that provides counseling and other support services, all free of charge, to women and families dealing with breast and ovarian cancer. The Peer Counselors on Support Connection’s staff, cancer survivors themselves, can provide support in-person, via email, or via toll free telephone (800-532-4290.) Support Connection also offers monthly support groups as well as a wide range of wellness and educational programs.
- American Breast Cancer Foundation is a national nonprofit providing assistance to uninsured and underserved individuals in the United States with breast cancer screening and diagnostic testing costs for those who qualify. Most people qualify for our programs as we go above the poverty guidelines. We help men and women of all ages with and without insurance who qualify for our program. We also provide resources for cancer patients as well who need other assistance.
Fashion and Beauty
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Cancer Be Glammed helps women battle the side effects of cancer treatment in comfort & style. Their website features fashionable post-op necessities, chemotherapy and radiation products, and unique gifts. Their guide,”What The Doctor Didn’t Order“ provides stylish recovery solutions and is downloadable from their site.
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Shop Well with You (SWY) is a nonprofit organization and body-image resource for women surviving cancer, their caregivers and healthcare providers.
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Haralee.com creates fantastic sleepwear and pillowcases which are made of wick-away fabrics so hot flashes do not ruin your sleep! These fabrics draw perspiration away from the body to the fabric where it evaporates quickly- just like LympheDIVAs sleeves!
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The beaubeau: “Beautiful Scarves for Beautiful Heads” Treat yourself to a scarf that is ‘heads above the rest’. This unique scarf was designed by someone who lost her own hair and wanted to remain fashionable and stylish. The beaubeau unites fashion and function and provides maximum comfort and security. We also provide sleep caps that stay in place while sleeping, headband scarves and unique gifts! Just because you have lost your hair does not mean you have lost your sense of style!
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Janac Mastectomy Wear developed the Been-A-Boob® breast prosthesis, a non-silicone form designed by a breast cancer survivor. Janac also produces different styles of specially designed bras and bra-tanks that gives new life to women with altered, removed or uneven breasts, allowing women all over the world to live with confidence, knowing that only they will know that they are wearing a prosthesis.
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Titillating Turbans are versatile 2-piece turban & head scarf sets that beautifully disguise hair loss, with endless ways to style them for casual wear to high fashion. Designed for a perfect fit with or without your own hair or a wig, you will look fabulous at every stage of hair thinning, loss or regrowth. Whether for yourself or as a gift, this timeless accessory will be enjoyed for years to come. “Look as Beautiful as We Know You Are.”
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Intuition Recovery Bra, designed by women for women, is a revolutionary new device that is the first and only postoperative bra to address the top five postoperative concerns of women: heal kicker, with less pain, less scarring, less irritation and adjustable fit